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LivingWithTrisomy.org

 

Links to family web pages offering information &

support to other families Living With Trisomy

 

 
 

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Trisomy 01 (1 link)

Trisomy 02 (1 link)

Trisomy 03 (2 links)

Trisomy 04 (6 links)

Trisomy 05 (1 link)

Trisomy 06 (1 link)

Trisomy 07 (2 links)

Trisomy 08 (1 link)

Trisomy 09 (4 links)

Trisomy 10 (2 links)

Trisomy 11 (1 link)

Trisomy 12 (1 link)

Trisomy 13 (14 links)

Trisomy 14 (3 links)

Trisomy 15 (1 link)

Trisomy 16 (2 links)

Trisomy 17  (2 links)

Trisomy 18 (15 links)

Trisomy 19 (2 links)

Trisomy 20 (1 link)

Trisomy 21 (2 links)

Trisomy 22 (1 link)

 

 


Trisomy 18
Information & Family Support Links

Morgan's World  -  Lots of photos of my son, Morgan, who is living with partial trisomy 18q, del 9.

 

Louise Ruth Pass -  born with Trisomy 18 - 23rd Jan 1990 & gained her wings 2nd July 1990. Our Precious 'squeeze' Louise
 

Amazing Grace... - The story of our daughter, Grace, who was diagnosed prenatally, carried to term and lived for 2 months. Our story and resources too!
 
Kam's page  -  My name is Kameron and I have full Trisomy 18 or Edward's Syndrome. I was born on May 8, 1997. Please view my photo journal in the photos section of this site.
 
Keren Elyse - This site includes lots of photos and letters to friends about Keren
 
Our Little Jessie - How an angel touched our lives.
 
Mieko  - lives with full trisomy 18. She was born 3/09/04.
 
Emma Grace's Story - Emma Grace Raulerson T18 (12/2/03 - 12/15/03) We tried hard to get her heart surgery, but were refused and she died.
 
http://leynamarieholstine.bravehost.com/ - In Loving Memory of our little angel Leyna Marie Holstine.  And to watch streaming Video of Leyna http://www.quickstream.com.au/gallery/view.aspvid=1B10364C3217&c=124 and click on "Leyna Marie Holstine - Sep 23, 2005"  Family can be contacted at bienschen23@yahoo.de
 
Mari's pictures - Trisomy 18 child pictures birth through age 4
Mari's Story and Our family's website - with links to Mari's Story told by Ginghamsburg Church in November 2001 and March 2002
Mari's Story - Our family's experience in dealing with the news of our daughter's genetic condition, Trisomy 18
 
Little Claire - Claire was diagnosed with Trisomy 18 and wasn't expected to live full term. She is still with us years later.
 
Sophie Elizabeth's Story -  Our family's tale of advocacy for appropriate medical care for our Trisomy 18 baby from prenatal diagnosis through the gaining of her wings.
 
 
 
 

Unfortunately, due to the large amount of spam that our "submit a link" page was generating, I have been forced to do away with that feature.  So to submit your rare trisomy child's website for linking, please use the below "Contact Us" and include the following information: your name, website url to be linked, which chromosome # to be linked under, website's title (if any) & a short description of your child's site.  I apologize for any inconvenience this causes legitimate rare trisomy submitters, but the spammers out number you at least 100:1.

     Contact Us     

All links from this site reflects each families personal journey with raising a Trisomy child. It is not meant to replace any medical advice of a professional familiar with your specific condition. The personal journeys in any parent's linked sites are only their opinions and their own journey with having a Trisomy child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within the pages as to your own child's symptoms and medical condition.

                                                                                                    Site last updated: 01/21/09